In 2005 I took care of a patient with Jakob-Creutzfeld disease (or Creutzfeld-Jakob, depending on where you trained). This an uncommon, rapidly progressive, neurological disease.
My patient's family got in touch with a research program at the NIH, where they were collecting brains from these patients for further studies. So after he died later that year, his brain was sent off to their research center.
To this day, once a year, around the time he died, I get a letter from the NIH, asking how the patient is doing.
I used to write back pointing out that THEY had his brain, and to ask him. Now I just toss them.