tag:blogger.com,1999:blog-5883634615775822475.post7194656464113188933..comments2024-03-26T16:46:21.764-04:00Comments on Doctor Grumpy in the House: Sympathy for the devilGrumpy, M.D.http://www.blogger.com/profile/09858110332436246760noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-5883634615775822475.post-38631934242581963802018-10-06T00:35:12.984-04:002018-10-06T00:35:12.984-04:00Don’t forget Andy Griffith (Guillain-Barré Syndrom...Don’t forget Andy Griffith (Guillain-Barré Syndrome).Ivan Ilyichhttps://www.blogger.com/profile/03188429891387548730noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-7193396481196151942018-09-16T19:03:52.938-04:002018-09-16T19:03:52.938-04:00I think I got a little piece of neurological disea...I think I got a little piece of neurological disease in my eye...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-16247039839103544252018-08-16T08:49:36.599-04:002018-08-16T08:49:36.599-04:00Love to you, Dr. G., for your care and dedication ...Love to you, Dr. G., for your care and dedication to these suffering people. And thank you for the perspective. I gotta go now, going to sign up for those dance classes I always wanted to take . . .Joaniehttps://www.blogger.com/profile/06818611564513091656noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-1490450919495651802018-08-12T19:57:36.799-04:002018-08-12T19:57:36.799-04:00I shared this link with a friend of mine, whose pa...I shared this link with a friend of mine, whose partner last year was diagnosed with early onset frontal something or another - its a form of dementia. It was only because they realised something was not quite RIGHT and kept pushing for testing that he was diagnosed. Thankfully the local neurologist said "I dont have enough experience in this" and referred them onto the Mind Body Centre in Sydney, who have been awesome, but yes, its a SHIT of a disease.Tassiegalhttps://www.blogger.com/profile/01937005091364457746noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-16405689448914054202018-08-11T12:01:08.935-04:002018-08-11T12:01:08.935-04:00Wow, what a letter. As a former Pediatric nurse a...Wow, what a letter. As a former Pediatric nurse and a nurse in a Neurosciences practice I have seen them all and they are horrible. Your letter is very moving about a hideous and insidious group of diseases. I have rocked a baby dying from a brain tumor who screamed constantly from pain and we could not relieve it. I've seen adults completely unable to comprehend ALS and have seen many fighting the ravages of MS. Thank you for being there for all those people and I will work on a good charity (charity navigator.com) to find one.Marjorienoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-74680027081406909412018-08-10T22:43:35.483-04:002018-08-10T22:43:35.483-04:00Thank you, Dr. Grumpy, to you and your colleagues ...Thank you, Dr. Grumpy, to you and your colleagues who work to treat patients, and thank you to the scientific researchers who work for that knowledge and, ultimately, treatment. My father had Parkinson's Disease, and (I am told) Lewy Body dementia at the end of his life. Because of the research that had already been done, he lived a fuller and longer life than would otherwise have been possible. I hope that someday there will be a cure.Common Household Momhttps://www.blogger.com/profile/03715969218648104267noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-59528318323201670212018-08-10T18:25:36.038-04:002018-08-10T18:25:36.038-04:00Well said.Well said.KJLhttps://www.blogger.com/profile/14020813371913296154noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-50802446160005522262018-08-09T19:48:48.279-04:002018-08-09T19:48:48.279-04:00Thank you, Dr. Grumpy. This is so moving and educa...Thank you, Dr. Grumpy. This is so moving and educational. I think I've known someone or of someone with nearly every neurological disease listed here. We do need to keep busy working on treatments, and hopefully, cures.Sapphirenoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-83123359371028464902018-08-08T09:49:17.864-04:002018-08-08T09:49:17.864-04:00My August 6 comment was addressed Dr Grumpy's ...My August 6 comment was addressed Dr Grumpy's foe, the voice of the post. Not sure that was clear.ronstewhttps://www.blogger.com/profile/11809825961862332106noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-2601529307094851612018-08-08T02:45:54.281-04:002018-08-08T02:45:54.281-04:00The list of illnesses people can come down with re...The list of illnesses people can come down with regardless their life-style or fitness, whether they are as fit as possible or some slovenly obese out of shape middle aged man or woman is disheartening. But I think the worst thing to happen is when a loved one falls under the influence of drugs or drink and no matter how much you plead or pray, they just can't seem to get rid of that 'demon.' I say this in sadness because my daughter-in-law's sister died of an overdose two years ago and then three hours ago, some very good friends's daughter-in-law was removed from life support that she had been on for two days after an overdose. The diseases you list Dr. Grumpy are something that can happen to any of us but addiction is a self-inflicted 'disease'. My heart hurts for my friends.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-83359437767929890422018-08-07T21:30:16.406-04:002018-08-07T21:30:16.406-04:00Cancer is scary...but disease in your brain, spina...Cancer is scary...but disease in your brain, spinal column, and nerves is the terrifying one to a nurse who has cared for patients with all of the diagnoses listed. The terrifying realization that your brain (your mind, your rationality) is defective and deteriorating, or that your finely tuned neural networks that allow the range of human actions have gotten distorted...and that the only real answer is 'learning to live with it" and trying to coax your body to develop compensatory nerves/musculoskeletal/cognitive functions for a while...<br />Cancer destroys your body, but neurological diseases destroy your self and leave your body behind. clairesmumhttps://www.blogger.com/profile/18320822826417512140noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-84684661050109631462018-08-07T18:15:42.298-04:002018-08-07T18:15:42.298-04:00Sir Terry Pratchett, who has died at the age of 66...Sir Terry Pratchett, who has died at the age of 66, suffered from a rare form of Alzheimer’s disease called posterior cortical atrophy (PCA), also known as Benson’s syndrome. http://home.bt.com/lifestyle/wellbeing/9-things-you-should-know-about-the-rare-form-of-alzheimers-that-sir-terry-pratchett-had-11363967942621<br /><br />And well, look at my user name and just ter try to guess what neurological disease I'm fighting, which goodness only knows how many famous people beyond Lewis Carroll suffer. Migraineurnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-51820889016690160232018-08-07T17:25:54.085-04:002018-08-07T17:25:54.085-04:00Thanks to you and all neurologists who are willing...Thanks to you and all neurologists who are willing to spend their days battling such implacable foes!<br /><br />I was diagnosed with an oligodendrolglioma - have been one of the very lucky ones, as that was 20 years ago and I am still fine - and one of the major consolation prizes has been a very good relationship with my neurologist. Sadly, he has recently been diagnosed with Parkinson's...<br /><br />And I could not agree more: let's all give to keep those scientists working on future cures!Winnicyclehttps://www.blogger.com/profile/13792357827558590827noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-19280911965560988572018-08-07T15:43:53.232-04:002018-08-07T15:43:53.232-04:00Thank you. Thank you. Ms. Donnahttps://www.blogger.com/profile/11945753071493117365noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-7017869725320013902018-08-07T03:46:50.993-04:002018-08-07T03:46:50.993-04:00Sadly HAVE a neurological disease, which had been ...Sadly HAVE a neurological disease, which had been untreatable until a year ago or so, but largely still is. Have seen people just ravaged by Huntington's disease, supranuclear palsy, Alzheimer's, Lewy Body dementia, (yes horrible), Parkinson's and my brother was diagnosed decades ago, at only six months of age, with grand mal epilepsy, (tonic clonic now I guess) and let's not forget Guillian Barre, myasthenia gravis, stroke, spinal cord injury, TBI and a host of other maladies which are all bad, yep along with ALS. Wish we were about 1,000 years in the future with REAL treatment available, rather than the alleged "symptom management," a misnomer for sure. Was one who did the "right" things but got slammed anyway. Preach it. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-15221260945801731552018-08-06T22:32:13.773-04:002018-08-06T22:32:13.773-04:00"Again I saw that under the sun the race is n..."Again I saw that under the sun the race is not to the swift, nor the battle to the strong, nor bread to the wise, nor riches to the intelligent, nor favor to the skillful; but time and chance happen to them all. For no one can anticipate the time of disaster. Like fish taken in a cruel net, and like birds caught in a snare, so mortals are snared at a time of calamity, when it suddenly falls upon them." (Ecclesiastes 9:11-12).<br /><br />Even so, we have to do everything we can when disaster strikes. My father was a doctor, so I appreciate all you do. I know how hard it is (I have "idiopathic peripheral neuropathy", although I suspect Celebrex. But suspicions are not proof). I hope your ability to do more will increase in time.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-35568715448387959062018-08-06T21:59:07.025-04:002018-08-06T21:59:07.025-04:00Good suggestions, I'll add some names. Thank y...Good suggestions, I'll add some names. Thank you.Grumpy, M.D.https://www.blogger.com/profile/09858110332436246760noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-32999318085377260352018-08-06T19:57:23.873-04:002018-08-06T19:57:23.873-04:00I'd like to read of some battles you have lost...I'd like to read of some battles you have lost and weapons that don't work as well for you as they once did. How has the war gone for you over the last 100, 50, 20, 10 years? Would make a good read some time in the coming weeks.ronstewhttps://www.blogger.com/profile/11809825961862332106noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-46701611909630895882018-08-06T17:52:51.410-04:002018-08-06T17:52:51.410-04:00What about individual with progressive supranuclea...What about individual with progressive supranuclear palsy PSP) like<br />Abdus Salam and Dudley Moore.larrybhttps://www.blogger.com/profile/10339410955446584931noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-80571569635489220612018-08-06T16:47:54.569-04:002018-08-06T16:47:54.569-04:00I hate all these diseases. My mom died of Lewy'...I hate all these diseases. My mom died of Lewy's Body Disease, terrible. She was one of those who took care of herself, ate right, exercised, and it took her very quickly and cruelly.Steph Bhttps://www.blogger.com/profile/17554113182696427950noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-19956253241286541262018-08-06T14:36:17.141-04:002018-08-06T14:36:17.141-04:00Yes. Well said, thank you.Yes. Well said, thank you.Katjahttp://journal.brokenclay.orgnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-30258441159805976642018-08-06T12:28:19.483-04:002018-08-06T12:28:19.483-04:00Experience with a benign cerebellar tumor in high ...Experience with a benign cerebellar tumor in high school (diagnosed at a time when the nearest CT was 3-hours -flight time), provided the wherewithal to deal with my son's schizophrenia. It is humbling, sometimes, to ponder on the compassion of those who've not personally dealt with infirmity.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-88061013275805205842018-08-06T12:19:14.711-04:002018-08-06T12:19:14.711-04:00Thank you.Thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-55503047123035963912018-08-06T11:24:10.269-04:002018-08-06T11:24:10.269-04:00Beautifully Said!Beautifully Said!herdoghttps://www.blogger.com/profile/05931435597196563588noreply@blogger.comtag:blogger.com,1999:blog-5883634615775822475.post-30419148885796254602018-08-06T10:16:43.972-04:002018-08-06T10:16:43.972-04:00Wonderful post! It brings it all home...Wonderful post! It brings it all home...bobbiehttps://www.blogger.com/profile/14353836074794786357noreply@blogger.com